Monday, September 29, 2008
Thursday, September 25, 2008
Visitation/Funeral Information
Visitation will be held Friday, September 26, from 3-5Pm and 7-9PM at Harry H. Witzke's Funeral Home, 4112 Old Columbia Pike, Ellicott City, MD 21043.
Funeral Mass on Saturday, September 27 at 11:30 AM, Church of the Resurrection, 3175 Paulskirk Drive, Ellicott City, MD 21042 with internment to follow at Crest Lawn Memorial Gardens, 3150 Mount View Road, Marriottsville, MD 21104
In lieu of flowers, contributions may be made to
Homewood @ Crumland Farms
7407 Willow Road
Frederick, MD 21702
Hospice of Frederick County Co
516 Trail Ave
Frederick, MD 21702
The family would like to extend their sincere appreciation to everyone for the warm thoughts, prayers, kindness and all of the postings that have brought us both laughs and tears, it is greatly appreciated.
Funeral Mass on Saturday, September 27 at 11:30 AM, Church of the Resurrection, 3175 Paulskirk Drive, Ellicott City, MD 21042 with internment to follow at Crest Lawn Memorial Gardens, 3150 Mount View Road, Marriottsville, MD 21104
In lieu of flowers, contributions may be made to
Homewood @ Crumland Farms
7407 Willow Road
Frederick, MD 21702
Hospice of Frederick County Co
516 Trail Ave
Frederick, MD 21702
The family would like to extend their sincere appreciation to everyone for the warm thoughts, prayers, kindness and all of the postings that have brought us both laughs and tears, it is greatly appreciated.
Wednesday, September 24, 2008
A Very Sad Day
It is with unimaginable sadness that we advise you that Elaine passed away this evening at 5:25PM. Her parents and friends were present as Elaine passed peacefully and without any pain or suffering.
Visitation and funeral arrangements will be posted as soon as possible. If scheduling allows, the preliminary thought is for Friday visitation and Saturday funeral.
We cannot imagine life without Elaine and although she is gone from us now, Elaine will live in our hearts forever.
Visitation and funeral arrangements will be posted as soon as possible. If scheduling allows, the preliminary thought is for Friday visitation and Saturday funeral.
We cannot imagine life without Elaine and although she is gone from us now, Elaine will live in our hearts forever.
Tuesday, September 23, 2008
Bad Day
As we have mentioned before, the goal of this site is to provide honest communication regarding Elaine's condition. Tuesday was not a very good day for Elaine and it seems as though her condition continues to deteriorate almost daily. Elaine spent all day in bed and while this was not the first time that has happened, today Elaine was unable to communicate effectively with visitors. Whether it is the increased medication or the advancing cancer (or both), Elaine spent the day in a deep sleep with little awareness of what was going on around her.
We understand the prognosis for Elaine but it has been shocking to see her condition deteriorate as quickly as it has. We hope that Elaine can bounce back from today with renewed strength but we also hope that if that is not possible that Hospice and the staff at Homewood can keep her as comfortable as possible.
Elaine has displayed an incredible amount of strength and courage as she has waged her battle, we ask for your continued prayers for her.
We understand the prognosis for Elaine but it has been shocking to see her condition deteriorate as quickly as it has. We hope that Elaine can bounce back from today with renewed strength but we also hope that if that is not possible that Hospice and the staff at Homewood can keep her as comfortable as possible.
Elaine has displayed an incredible amount of strength and courage as she has waged her battle, we ask for your continued prayers for her.
Monday, September 22, 2008
Sunday/Monday
Elaine had a very restful day on Monday, spending a great deal of time sleeping. Despite the Morphine, her pain level continued to increase so the frequency of the pain medication has been increased from every two hours to every hour. In what is a nasty cycle, the increased pain medication likely means Elaine will spend more time resting since the morphine makes her tired/drowsy.
On Sunday, Elaine was able to get into her wheelchair and enjoyed a couple of hours listening to live music provided by "Brad Baby" (sorry I don't know his real name), one of Elaine's favorite performers. This performance was arranged by her great friends Terri, Jane, & Kim (if anyone else was involved I apologize) and by all accounts Elaine had a wonderful time enjoying the music and visiting with everyone. By the end, Elaine was quite tired and asked to go back to her room. Many thanks for everyone involved in making the day special for Elaine!
We hope you like the new picture of Elaine that was added, it was taken in late June during a trip to the QVC studios in West Chester, PA with her mom and sister in law Michelle.
Thank you for checking in on Elaine.
On Sunday, Elaine was able to get into her wheelchair and enjoyed a couple of hours listening to live music provided by "Brad Baby" (sorry I don't know his real name), one of Elaine's favorite performers. This performance was arranged by her great friends Terri, Jane, & Kim (if anyone else was involved I apologize) and by all accounts Elaine had a wonderful time enjoying the music and visiting with everyone. By the end, Elaine was quite tired and asked to go back to her room. Many thanks for everyone involved in making the day special for Elaine!
We hope you like the new picture of Elaine that was added, it was taken in late June during a trip to the QVC studios in West Chester, PA with her mom and sister in law Michelle.
Thank you for checking in on Elaine.
Saturday, September 20, 2008
Saturday/Updates
Elaine was very tired on Saturday and spent a lot of the day sleeping. While awake, she was very happy to receive visitors but it was clear this was a day of rest for her. Despite the Morphine, Elaine still has some pain, her memory issues persist and she still has no appetite, though she will have small amounts of food from time to time.
The Hospice team did address the lack of appetite and advised that this is quite normal for patients with Elaine's condition. They further explained that Elaine's body will tell her when and what it wants to eat and there is a very good reason her body is telling her it does not want anything now. As contradictory as it may sound, Hospice explained that food would have some very negative effects; it would serve as fuel for the cancer while putting more stress on Elaine's digestive system and other organs. The nurse expained that it is OK for Elaine not to be eating and that we should not be so concerned with her lack of appetite. If visiting during meal time, please keep this in mind.
The last post failed to mention one change for Elaine, my apologies. Late Wednesday night, Elaine was placed on oxygen because the oxygen saturation levels in her blood dropped below acceptable levels. Although these levels quickly returned to normal, Elaine remains on oxygen.
Another update for the music lovers. The MP3 player has been brought back into the room and Uncle Ab brought a lot of new music on his visit last Thursday. While Elaine has been through some good days and some bad ones and it seems that lately her condition changes on an almost daily basis, one constant has been that she LOVES to listen to music and she loves to have visitors to sing along with !!! Please feel free to enjoy some music with her on your visits, the CD's are in the bottom drawer of the nightstand.
Finally, there has been a big change in Elaine's condition over the past two weeks and I hope that we have accurately reflected that on these postings. Her condition is also changing faster than it did two weeks ago so we will try to post on a daily basis as much as possible.
The Hospice team did address the lack of appetite and advised that this is quite normal for patients with Elaine's condition. They further explained that Elaine's body will tell her when and what it wants to eat and there is a very good reason her body is telling her it does not want anything now. As contradictory as it may sound, Hospice explained that food would have some very negative effects; it would serve as fuel for the cancer while putting more stress on Elaine's digestive system and other organs. The nurse expained that it is OK for Elaine not to be eating and that we should not be so concerned with her lack of appetite. If visiting during meal time, please keep this in mind.
The last post failed to mention one change for Elaine, my apologies. Late Wednesday night, Elaine was placed on oxygen because the oxygen saturation levels in her blood dropped below acceptable levels. Although these levels quickly returned to normal, Elaine remains on oxygen.
Another update for the music lovers. The MP3 player has been brought back into the room and Uncle Ab brought a lot of new music on his visit last Thursday. While Elaine has been through some good days and some bad ones and it seems that lately her condition changes on an almost daily basis, one constant has been that she LOVES to listen to music and she loves to have visitors to sing along with !!! Please feel free to enjoy some music with her on your visits, the CD's are in the bottom drawer of the nightstand.
Finally, there has been a big change in Elaine's condition over the past two weeks and I hope that we have accurately reflected that on these postings. Her condition is also changing faster than it did two weeks ago so we will try to post on a daily basis as much as possible.
Friday, September 19, 2008
Condition has stablilized
Elaine's condition continues to be relatively stable on Thursday & Friday. She remains fatigued but has been in better spirits and able to enjoy visiting with family and friends both days. Friday afternoon, Elaine was able to get out of bed and keep the appointment she had to have her hair cut. She was tired but very determined to keep the appointment. This was only the second time this week Elaine was out of bed so we are very happy to see her in the wheelchair this afternoon.
Hospice Care of Frederick County met with Elaine on Thursday. Hospice care was discussed with Elaine, along with her Mom & Dad and brother. It was agreed that Hospice will begin seeing Elaine going forward. Some of you probably know quite a bit about Hospice, but they are essentially being brought in to work in conjunction with the staff at Homewood to ensure that Elaine is kept as comfortable as possible. As mentioned by their staff in the meeting, Elaine will be moving from "skilled care" to "comfort care" and the Hospice staff is specialized and skilled in providing that for Elaine. Initially, a Hospice nurse will visit once a week and aides will visit twice a week to check on Elaine. As conditions change, they will adjust their schedule accordingly.
We wish everyone a very happy weekend and continue to appreciate your concern and prayers for Elaine.
Hospice Care of Frederick County met with Elaine on Thursday. Hospice care was discussed with Elaine, along with her Mom & Dad and brother. It was agreed that Hospice will begin seeing Elaine going forward. Some of you probably know quite a bit about Hospice, but they are essentially being brought in to work in conjunction with the staff at Homewood to ensure that Elaine is kept as comfortable as possible. As mentioned by their staff in the meeting, Elaine will be moving from "skilled care" to "comfort care" and the Hospice staff is specialized and skilled in providing that for Elaine. Initially, a Hospice nurse will visit once a week and aides will visit twice a week to check on Elaine. As conditions change, they will adjust their schedule accordingly.
We wish everyone a very happy weekend and continue to appreciate your concern and prayers for Elaine.
Thursday, September 18, 2008
Improvement
Elaine continued to show improvement on Wednesday, it appears that the Morphine is helping quite a bit. Elaine was in good spirits, had visitors throughout the day and was able to get into her wheelchair in the late afternoon and go to dinner, this was the first time Elaine has been up since Sunday afternoon. While this activity did tire her out, it is great to hear that there is improvement in her condition!
We hope that Elaine continues to gain more strength over the coming days.
We hope that Elaine continues to gain more strength over the coming days.
Tuesday, September 16, 2008
Difficult Days
The last couple of days have been difficult for Elaine. Monday was a very tough day, Elaine was in a great deal of pain and very fatigued, spending all day in bed. Conversation was limited and Elaine drifted in and out of sleep most of the day. It was sadly the worst day Elaine has had since this ordeal began. By days end, Elaine had been placed on low doses of Morphine to control her pain. Tuesday saw improvement in her condition, the medication kept her pain level under control, her energy level was improved and she was able to engage in conversation, although she did spend the day in bed again.
We hope that the medicine will allow Elaine to rest and regain strength as she continues this very difficult battle. Our prayers are with her always!
We hope that the medicine will allow Elaine to rest and regain strength as she continues this very difficult battle. Our prayers are with her always!
Sunday, September 14, 2008
Weekend
The weekend saw Elaine go through a couple of tougher days with a noticable drop in energy and the onset of some nausua and stomach pain. The reality is that all of Elaine's conditions continue to be present and some are getting worse. Late last week, Elaine began receiving pain medicine to offset the back and shoulder issues she has been dealing with. Elaine was opposed to taking pain pills for a long time but can no longer go without them. She has continued to receive all her therapy for now.
The most pressing issues at this time (this is opinion, not a medical conclusion) are fatigue and lack of appetite. Elaine has very little to no appetite and nothing on her plate appeals to her at all. Fatigue is becoming more of an issue likely because of the medication(s), continued lack of appetite/adequate nutrition, and whatever toll the cancer is taking on her body. It was mentioned on the last post that more daytime rest would be required and it was clear over the weekend that Elaine needs more rest than ever before.
Elaine did have a chance on Friday to have a lot of the postings that have been left on this blog read to her. She wanted to hear most of them more than once, and as before they brought both tears and laughter and it is very evident how much she appreciates each and every posting.
Elaine is a remarkable woman and we wish her continued strength and courage!
The most pressing issues at this time (this is opinion, not a medical conclusion) are fatigue and lack of appetite. Elaine has very little to no appetite and nothing on her plate appeals to her at all. Fatigue is becoming more of an issue likely because of the medication(s), continued lack of appetite/adequate nutrition, and whatever toll the cancer is taking on her body. It was mentioned on the last post that more daytime rest would be required and it was clear over the weekend that Elaine needs more rest than ever before.
Elaine did have a chance on Friday to have a lot of the postings that have been left on this blog read to her. She wanted to hear most of them more than once, and as before they brought both tears and laughter and it is very evident how much she appreciates each and every posting.
Elaine is a remarkable woman and we wish her continued strength and courage!
Friday, September 12, 2008
Update
Elaine continues to have the same issues reported on the last blog. On Thursday Mom and Dad attended a meeting with staff members who advised that Elaine's fatigue level continues to increase and more rest time will be necessary during daylight hours to allow her to obtain the proper amount of rest. When visiting during the day, don't be surprised if Elaine is in bed getting the rest she requires.
She had a good week with a lot of visitors, which is the best medicine she can receive right now. As mentioned before, nothing lifts her spirits more than seeing family and friends walk through her door.
Your continued support, concern and prayers are greatly appreciated.
She had a good week with a lot of visitors, which is the best medicine she can receive right now. As mentioned before, nothing lifts her spirits more than seeing family and friends walk through her door.
Your continued support, concern and prayers are greatly appreciated.
Monday, September 8, 2008
Update
Sorry we have missed the past couple of days, here are some updates on Elaine.
In response to the Oncologist visit, Elaine has repeatedly said since then that she does not want to undergo chemotherapy.
Her continued issues at this time are short term memory loss, deteriorating vision, lack of appetite, overall fatigue and shoulder and back discomfort. As mentioned before, the shoulder pain is a result of the shoulder being out of socket because her muscles are too weak to hold it in place. Her wheelchair has been fitted with a new support to help with this and will hopefully offer some relief. Her back pain is a muscle issue and is caused because her right side muscles must compensate for the lack of strength on the left side.
She was able to watch/listen to most of the Ravens game with her Dad providing the commentary and some play by play action. As you may know, it is hard for Elaine to stay focused on anything for very long, so Dad had to keep her updated on the game. Elaine enjoyed the first half of the game but became too tired to enjoy the second half of the surprising Ravens victory.
After weeks of pureed food that has not been very appealing, Elaine had "Sloppy Joe's" for dinner on Saturday and actually loved it!
She was able to get her hair cut on Thursday and while the reports are that it looks great, Elaine said it wasn't as good as Pat does it!!
In response to the Oncologist visit, Elaine has repeatedly said since then that she does not want to undergo chemotherapy.
Her continued issues at this time are short term memory loss, deteriorating vision, lack of appetite, overall fatigue and shoulder and back discomfort. As mentioned before, the shoulder pain is a result of the shoulder being out of socket because her muscles are too weak to hold it in place. Her wheelchair has been fitted with a new support to help with this and will hopefully offer some relief. Her back pain is a muscle issue and is caused because her right side muscles must compensate for the lack of strength on the left side.
She was able to watch/listen to most of the Ravens game with her Dad providing the commentary and some play by play action. As you may know, it is hard for Elaine to stay focused on anything for very long, so Dad had to keep her updated on the game. Elaine enjoyed the first half of the game but became too tired to enjoy the second half of the surprising Ravens victory.
After weeks of pureed food that has not been very appealing, Elaine had "Sloppy Joe's" for dinner on Saturday and actually loved it!
She was able to get her hair cut on Thursday and while the reports are that it looks great, Elaine said it wasn't as good as Pat does it!!
Thursday, September 4, 2008
Elaine's Room - PLEASE READ
Please DO NOT move any furniture in Elaines' room, her entire room was designed by the therapy and medical team at Homewood specifically for Elaine in the manner that is needed to assist in her therapy and rehabilitation.
No one, except for the medical team at Homewood, has permission or is authorized to move or rearrange any furniture in Elaine's room.
Your cooperation is greatly appreciated.
No one, except for the medical team at Homewood, has permission or is authorized to move or rearrange any furniture in Elaine's room.
Your cooperation is greatly appreciated.
Wednesday, September 3, 2008
Oncologist Visit
Today Elaine met with her Oncologist, Dr. Oh of the Cancer Care Center in Frederick, MD, accompanied by her parents and brother. Please keep in mind that this site is meant as a communication tool and the intent is to share facts and reality with those of you who are concerned with Elaine's well being.
Dr. Oh reviewed her recent test results and advised us that the Cancer has continued to grow and has made what he would deem "normal" progress since it was originally detected. It has intensified in her Liver and spread to Lymph nodes around her Kidney. On the positive side, cancer was not detected in any other organs at this time and the blood tests were all at acceptable levels. The doctor thought that Elaine was relatively stable and if she wanted to attempt chemotherapy, now would be the time to do it. Very honest discussions were held regarding the pros and cons of undergoing Chemotherapy and what symptoms and results Elaine could expect with and without treatment, knowing that Pancreatic cancer is extremely aggressive and that her prognosis is grave. Chemotherapy is further complicated due to the stroke, which has left Elaine in a weakened condition and there is profound concern over the toll it would take on her.
A decision will now have to be made in the coming days as to whether or not Elaine will undergo Chemotherapy.
We wish Elaine well and ask for your prayers and strength for Elaine during this difficult time.
Dr. Oh reviewed her recent test results and advised us that the Cancer has continued to grow and has made what he would deem "normal" progress since it was originally detected. It has intensified in her Liver and spread to Lymph nodes around her Kidney. On the positive side, cancer was not detected in any other organs at this time and the blood tests were all at acceptable levels. The doctor thought that Elaine was relatively stable and if she wanted to attempt chemotherapy, now would be the time to do it. Very honest discussions were held regarding the pros and cons of undergoing Chemotherapy and what symptoms and results Elaine could expect with and without treatment, knowing that Pancreatic cancer is extremely aggressive and that her prognosis is grave. Chemotherapy is further complicated due to the stroke, which has left Elaine in a weakened condition and there is profound concern over the toll it would take on her.
A decision will now have to be made in the coming days as to whether or not Elaine will undergo Chemotherapy.
We wish Elaine well and ask for your prayers and strength for Elaine during this difficult time.
Monday, September 1, 2008
Sunday-Monday
Elaine had a steady stream of visitors on Sunday and Monday and was able to spend time outside on both days after lunch enjoying cousin Mike's Peach ice cream for desert. Given the holiday weekend, she did not have therapy but that will resume on Tuesday.
On Sunday, we discovered that there are four computers available for resident use located just beyond the chapel by the main reception area. We utilized the computer to access this blog and read the comments to Elaine directly from this site. I can tell you that Elaine enjoyed hearing all of the comments that have been left for her, some brought tears and others brought laughter but all of them touched her heart very deeply. It would be a great activity for anyone to participate in while visiting Elaine, she enjoyed the blog and approved of the picture we have posted. Only the comments left by all of you were read to her, we did not read any of the postings.
Her musical collection was increased this weekend with the addition of the soundtrack to Jersey Boys and the return of the Abba/Beatles/Beach Boys mix. If anyone is visiting and would like to listen to some music with Elaine, the CD's are located in the top drawer of the dresser that the CD player sits on.
Elaine has an important week ahead of her, we wish her all the best.
As always, your concern, thoughts and prayers are greatly appreciated.
On Sunday, we discovered that there are four computers available for resident use located just beyond the chapel by the main reception area. We utilized the computer to access this blog and read the comments to Elaine directly from this site. I can tell you that Elaine enjoyed hearing all of the comments that have been left for her, some brought tears and others brought laughter but all of them touched her heart very deeply. It would be a great activity for anyone to participate in while visiting Elaine, she enjoyed the blog and approved of the picture we have posted. Only the comments left by all of you were read to her, we did not read any of the postings.
Her musical collection was increased this weekend with the addition of the soundtrack to Jersey Boys and the return of the Abba/Beatles/Beach Boys mix. If anyone is visiting and would like to listen to some music with Elaine, the CD's are located in the top drawer of the dresser that the CD player sits on.
Elaine has an important week ahead of her, we wish her all the best.
As always, your concern, thoughts and prayers are greatly appreciated.
Saturday, August 30, 2008
Labor Day Weekend
The last two days have been good for Elaine, here is an general update:
- She continues to struggle with short term memory issues
- She continues to have some left shoulder pain, her wheelchair will again be equipped with a
support to relieve the stress on her shoulder
- Her therapy continues and is going well, Mom thought her speech continues to improve
- Homewood continues to be a more active environment for her and she has been participating
in more activities here than while she was at Northampton
- She missed her hair appointment on Friday but it has been rescheduled for next Thursday
- A continued steady stream of visitors have helped keep her spirits up
Wishing everyone a happy and safe Labor Day weekend.
- She continues to struggle with short term memory issues
- She continues to have some left shoulder pain, her wheelchair will again be equipped with a
support to relieve the stress on her shoulder
- Her therapy continues and is going well, Mom thought her speech continues to improve
- Homewood continues to be a more active environment for her and she has been participating
in more activities here than while she was at Northampton
- She missed her hair appointment on Friday but it has been rescheduled for next Thursday
- A continued steady stream of visitors have helped keep her spirits up
Wishing everyone a happy and safe Labor Day weekend.
Thursday, August 28, 2008
Long Day
On Wednesday, Elaine had a very good morning and was in good spirits when she left for her early afternoon appointment to have the CT and PET scans done. Time consuming tests for anyone, it took nearly 3 1/2 hours to complete the tests as the staff had to be very careful moving Elaine on and off of the machines. Elaine handled this like a trooper and returned to Homewood in time for dinner, still in a good mood but very tired.
The results of these scans will be known next Wednesday when Elaine visits with the Oncologist.
The results of these scans will be known next Wednesday when Elaine visits with the Oncologist.
Tuesday, August 26, 2008
Doctors, Tests & Visitors
Wednesday is the day Elaine will have a new CT and PET test performed and the follow-up visit with the Oncologist has been scheduled for next Wednesday, September 3rd. This will be a very important day as the Oncologist will have the test results and will be able to discuss the status of the cancer and potential treatment plans.
Elaine met today with Dr. Kline (sp?) who will be in charge of her care at Homewood, not only is he Mom & Dad's family doctor, he is also the Medical Director at Homewood. We can take comfort that Elaine will be well cared for at Homewood. The doctor prescribed an anti-inflammatory medicine to help ease the back pain Elaine has been experiencing. The cold that Elaine had is much better and almost gone and she has begun speech, physical and occupational therapy; she will be meeting with each therapist daily five days a weeks.
Between updates from the family and reading the postings, Elaine has had plenty of company over the last couple of days. Nothing puts Elaine in a good mood faster then the sight of family and friends walking thru her door. A calendar has been hung in Elaine's room to help coordinate visits, please write your name on the calendar if you know you will be visiting on a given day. The goal is to fill as many days as possible, this will not only help Elaine know who is visiting on each day, it will hopefully ensure a steady flow of visitors each day. All of that being said, everyone is welcome at any time, the calendar was a great idea and a useful tool during Elaine's stay at Kernan's.
Thank you for checking in on Elaine, your support is greatly appreciated!!
Elaine met today with Dr. Kline (sp?) who will be in charge of her care at Homewood, not only is he Mom & Dad's family doctor, he is also the Medical Director at Homewood. We can take comfort that Elaine will be well cared for at Homewood. The doctor prescribed an anti-inflammatory medicine to help ease the back pain Elaine has been experiencing. The cold that Elaine had is much better and almost gone and she has begun speech, physical and occupational therapy; she will be meeting with each therapist daily five days a weeks.
Between updates from the family and reading the postings, Elaine has had plenty of company over the last couple of days. Nothing puts Elaine in a good mood faster then the sight of family and friends walking thru her door. A calendar has been hung in Elaine's room to help coordinate visits, please write your name on the calendar if you know you will be visiting on a given day. The goal is to fill as many days as possible, this will not only help Elaine know who is visiting on each day, it will hopefully ensure a steady flow of visitors each day. All of that being said, everyone is welcome at any time, the calendar was a great idea and a useful tool during Elaine's stay at Kernan's.
Thank you for checking in on Elaine, your support is greatly appreciated!!
Saturday, August 23, 2008
Visit to Oncologist
Elaine met with her new Oncologist on Friday, accompanied by Mom & Dad. Mom said the doctor was nice and spent quite a bit of time talking with Elaine, asking her alot of questions and discussing the pros and cons of chemotherapy. The doctor took this time with Elaine to assess her overall condition and this information will help him to determine a treatment plan. The doctor also requested lab work, all of her records and a new CT and PET scan to determine the current status of the cancer. The tests have been scheduled for Wednesday, August 27th. Once all of these results are available, a follow up visit with the Oncologist will be scheduled. The Oncologist has also recommended a Neurologist consultation and a meeting with a family doctor is scheduled for next week. On top of all of this, Elaine is battling a cold. We wish her well as she enters a very busy week!!!
Aside from the trip to the Doctor, Elaine's first full day at Homewood was full of activity. When Mom and Dad arrived in the morning, Elaine was playing Bingo and in the afternoon she spent time listening to live music in the activity center. It seems that Homewood has a more active environment and the staff will make sure that Elaine does not stay idle for long.
Steve, Terry, Tim and Noelle drove from North Carolina to Maryland last night to visit with Elaine over the weekend, I know she is looking forward to seeing them.
Hoping everyone has a wonderful weekend!!
Aside from the trip to the Doctor, Elaine's first full day at Homewood was full of activity. When Mom and Dad arrived in the morning, Elaine was playing Bingo and in the afternoon she spent time listening to live music in the activity center. It seems that Homewood has a more active environment and the staff will make sure that Elaine does not stay idle for long.
Steve, Terry, Tim and Noelle drove from North Carolina to Maryland last night to visit with Elaine over the weekend, I know she is looking forward to seeing them.
Hoping everyone has a wonderful weekend!!
Thursday, August 21, 2008
Room Looks Nice
After Dad signed enough papers to fill a small notebook, Elaine was transferred to Homewood this afternoon. Homewood sent their handicap van and moved her in the wheelchair. Mom rode along with her.
Mom and Dad say there is no comparison between the 2 facilities, but Elaine's response was "room looks nice, but she doesn't want to be in any of them". Elaine doesn't like moving at all so the day is rather tense.
If you look at her profile, I have included her room number (252) and added her room phone number.
She struggles to find the phone and button to call the nurse. Please keep this in mind when calling her.
Have a restful night Elaine.
Mom and Dad say there is no comparison between the 2 facilities, but Elaine's response was "room looks nice, but she doesn't want to be in any of them". Elaine doesn't like moving at all so the day is rather tense.
If you look at her profile, I have included her room number (252) and added her room phone number.
She struggles to find the phone and button to call the nurse. Please keep this in mind when calling her.
Have a restful night Elaine.
Wednesday, August 20, 2008
New Home
Sorry for the missed post on Monday.... It was written but I'll claim operator error.
Statistics say people in the US move an average of every 7 years. Elaine has been in her home in Brooklyn for many more than that, but has recently moved seemingly every 2 weeks. This move will be a good one since it is to the care center Mom and Dad really wanted her in. It is beautiful, highly rated and respected, has Hospice care and has a lot more space in each room. The move takes place on Thursday August 21. She will be staying at Homewood at Crumland Farms in Frederick. Website .... http://www.homewood.com/pubs/locations/Crumland_Farms_Dir.cfm
Not sure about direct phone number yet.
Elaine has an appointment with the Oncologist on Friday. She said she is looking forward to the appointment for an update, but afraid of what he is going to tell her. Based upon the oncologist recommendation about chemotherapy treatment (it has not been recommended due to her weakened condition and stroke issues) she may enter into Hospice Care.
Elaine says her friend Sharon from SW Virginia came to visit her on Monday. I'm sure it was a wonderful visit. I noticed that Debbie and Joanne made comments from their visits this week.
May God bless Elaine, touch her with his comfort and strength, and may He also calm each of our hearts, control our thoughts, and may we each seek His wisdom as we try to understand Elaine's health and life battle.
I encourage you to leave a comment and/or prayer for Elaine as she loves to have these read to her and we will be making a book of all of them for her to keep at the nursing home.
Statistics say people in the US move an average of every 7 years. Elaine has been in her home in Brooklyn for many more than that, but has recently moved seemingly every 2 weeks. This move will be a good one since it is to the care center Mom and Dad really wanted her in. It is beautiful, highly rated and respected, has Hospice care and has a lot more space in each room. The move takes place on Thursday August 21. She will be staying at Homewood at Crumland Farms in Frederick. Website .... http://www.homewood.com/pubs/locations/Crumland_Farms_Dir.cfm
Not sure about direct phone number yet.
Elaine has an appointment with the Oncologist on Friday. She said she is looking forward to the appointment for an update, but afraid of what he is going to tell her. Based upon the oncologist recommendation about chemotherapy treatment (it has not been recommended due to her weakened condition and stroke issues) she may enter into Hospice Care.
Elaine says her friend Sharon from SW Virginia came to visit her on Monday. I'm sure it was a wonderful visit. I noticed that Debbie and Joanne made comments from their visits this week.
May God bless Elaine, touch her with his comfort and strength, and may He also calm each of our hearts, control our thoughts, and may we each seek His wisdom as we try to understand Elaine's health and life battle.
I encourage you to leave a comment and/or prayer for Elaine as she loves to have these read to her and we will be making a book of all of them for her to keep at the nursing home.
Saturday, August 16, 2008
Weekends and visitors
We take so many things for granted. A breath of fresh air, a busy day at work, that TGIF feeling, weekend plans, walking, laughter, family and friends. We presume we control where we go and when we go there.
Debbie (cousin) and her family visited Elaine on Friday night and Tom & Michelle visited her on Saturday morning.
The folks at the home got Elaine out of bed, dressed and seated in her wheelchair. This morning Elaine, Tom and Michelle went outside and sat and talked for an hour or so. She ate soup and pureed peaches and drank a high protein drink. Her diet was changed to puree so she could eat easier (still no appetite). Her wheelchair is now a modified version (no Tim Taylor involvement).
Apparently the pain in her left shoulder was caused by some misalignment due to poor muscles not holding stuff in place (sorry for the tech talk). The modified wheelchair helps hold her shoulder in place and should help eliminate that pain.
Even this afternoon, she was in good spirits, but tired from activity.
Please do not be offended if you have visited Elaine but not mentioned. It simply means we did not know you were there.
She obviously cannot go anywhere, does not control much, would love to say what a great Monday morning this is to co-workers and friends, and spend time with friends.
Visitors do make a difference. Frederick is quite a way from Baltimore, but close to Mom and Dad who tend to so many of her needs. Thank you for your notes, the cards sent to her, your prayers, the comments you post. When getting by, these things do make a difference. She will say once in a while, they make me laugh.
Debbie (cousin) and her family visited Elaine on Friday night and Tom & Michelle visited her on Saturday morning.
The folks at the home got Elaine out of bed, dressed and seated in her wheelchair. This morning Elaine, Tom and Michelle went outside and sat and talked for an hour or so. She ate soup and pureed peaches and drank a high protein drink. Her diet was changed to puree so she could eat easier (still no appetite). Her wheelchair is now a modified version (no Tim Taylor involvement).
Apparently the pain in her left shoulder was caused by some misalignment due to poor muscles not holding stuff in place (sorry for the tech talk). The modified wheelchair helps hold her shoulder in place and should help eliminate that pain.
Even this afternoon, she was in good spirits, but tired from activity.
Please do not be offended if you have visited Elaine but not mentioned. It simply means we did not know you were there.
She obviously cannot go anywhere, does not control much, would love to say what a great Monday morning this is to co-workers and friends, and spend time with friends.
Visitors do make a difference. Frederick is quite a way from Baltimore, but close to Mom and Dad who tend to so many of her needs. Thank you for your notes, the cards sent to her, your prayers, the comments you post. When getting by, these things do make a difference. She will say once in a while, they make me laugh.
Thursday, August 14, 2008
3 Doctors
Elaine is about the same as yesterday. The bad pains in her leg are caused by muscle spasms.
There are actually 3 Doctors who will be reviewing her case. A Neurologist, Oncologist, and an Ophthalmologist. Dad said the Oncologist is very well respected. They are also planning to do some blood tests. We await these doctors findings
The physical therapists got Elaine standing up. They did all the work and kept her upright.
Her health status is reviewed every Friday to determine the overall effect of the therapies and other medical symptoms. Her insurance company is advised of this report so they can determine what the on-going reimbursement will be.
There are actually 3 Doctors who will be reviewing her case. A Neurologist, Oncologist, and an Ophthalmologist. Dad said the Oncologist is very well respected. They are also planning to do some blood tests. We await these doctors findings
The physical therapists got Elaine standing up. They did all the work and kept her upright.
Her health status is reviewed every Friday to determine the overall effect of the therapies and other medical symptoms. Her insurance company is advised of this report so they can determine what the on-going reimbursement will be.
Wednesday, August 13, 2008
Weight Loss
When Elaine began describing the events leading up to her admission to the hospital, she said that for the prior two months she had no appetite. Without the assistance of Jenny Craig she realized a loss of 20 pounds during that time. While she was at University of Maryland Hospital another 7 pounds disappeared. She moved to Kernan Rehab Center where her meals were pureed everything. It was hard to tell the difference between mashed potatoes and pasta, and who could tell what green vegetable was being served. Finally, even with home made ice cream (she devoured this) brought in by her cousin Mike, and fantastic pureed meals by Chef Kris (Cassie's husband) she lost a whopping 20 pounds during the 2 week stay. Now that she is at Northampton Manor and no longer has troubles swallowing, they have converted her meals to regular food, minus, hold your breath, chocolate and spicy foods. She does have to drink some Maalox before every meal. Our prayer is that she will eat and enjoy some good food and break the trend of rapid weight loss.
This cancer spreads fast and is not curable once it leaves the pancreas. It does not have many warning signs. As it was in Elaine's case, the first sign was loss of appetite.
This next bit of news will surely earn this writer a stern look of disapproval from Elaine. I suppose we all would respond the same way. Some things in life are just personal. Truth is truth and cannot be dismissed when providing her friends and family an update on her medical condition. The past few days she has lost control of bladder and bowel functions and is being treated with some medicine. Hopefully the doctor who visits her this evening can identify the cause of this symptom. Finally, an oncologist is being selected to review the cancer elements.
Today was not a good day for her. She could only say how terrible the pain is in her left leg during a phone call this evening. Earlier today she could not identify her clothes to the physical therapist which resulted in a trip to the Nursing home by Mom with some new clothes. Thank God she is in close proximity to Dad and Mom. She slept for most of the afternoon and only had a 15 minute talk with Mom and Dad during their 3 hour stay. Elaine also complained about how badly her shoulder hurt and that she could not see very well.
By the way, please include Mom and Dad (Pat and Otts) in your prayers as well. They need encouragement and God's strength.
She loves phone calls (remember she might forget that she's talking to you or to say goodbye. Keep it short!) and visitors, but gets tired very easily and needs rest after her physical therapy.
Please don't forget to write your stories in the comments.
This cancer spreads fast and is not curable once it leaves the pancreas. It does not have many warning signs. As it was in Elaine's case, the first sign was loss of appetite.
This next bit of news will surely earn this writer a stern look of disapproval from Elaine. I suppose we all would respond the same way. Some things in life are just personal. Truth is truth and cannot be dismissed when providing her friends and family an update on her medical condition. The past few days she has lost control of bladder and bowel functions and is being treated with some medicine. Hopefully the doctor who visits her this evening can identify the cause of this symptom. Finally, an oncologist is being selected to review the cancer elements.
Today was not a good day for her. She could only say how terrible the pain is in her left leg during a phone call this evening. Earlier today she could not identify her clothes to the physical therapist which resulted in a trip to the Nursing home by Mom with some new clothes. Thank God she is in close proximity to Dad and Mom. She slept for most of the afternoon and only had a 15 minute talk with Mom and Dad during their 3 hour stay. Elaine also complained about how badly her shoulder hurt and that she could not see very well.
By the way, please include Mom and Dad (Pat and Otts) in your prayers as well. They need encouragement and God's strength.
She loves phone calls (remember she might forget that she's talking to you or to say goodbye. Keep it short!) and visitors, but gets tired very easily and needs rest after her physical therapy.
Please don't forget to write your stories in the comments.
Monday, August 11, 2008
Northampton Manor
This is the first posting made on behalf of Elaine. It is perhaps the best way to provide an update on her medical condition to everyone in a timely fashion.
This site also allows you to enter "comments". Our hope is that you will write a comment that describes a favorite memory, a trip, a good story, funny moments, pictures, etc. These comments are going to be printed out and placed into a book in her room. This will make for some good reading and conversation with her.
Please let us know if you have some good tips regarding blogspots. If you have some good digital photos we would like to use them to personalize the "main page".
Elaine is in good spirits today at her new home, although the weekend was quite upsetting. She was moved from Kernan Rehabilitation Center in Baltimore on Friday August 8.
Northampton Manor www.northamptonmanor.org is a nursing home in Frederick, MD that can tend to her daily needs as well as provide physical, occupational, and speech therapies. She received those therapies today and said the therapists were very nice. Tomorrow ---- 8am ---- physical therapy. Let's see if she thinks that therapist is still nice.
Dad and Mom arranged for a phone to be installed in her room. The telephone "should" be working by 5pm tomorrow, Tuesday 8/12/08. Her phone number is 301-662-7465. Please keep in mind several things when you call her. She may be in therapy or cruising the halls in her wheelchair, or most importantly, she may just hang up on you. Stroke patients have trouble focusing and the telephone is very easy to forget about. Just so you know, she still remembers who she was talking to.
A very brief update on her overall condition. Doctors found spots on her lungs from an x-ray that was taken. The spots werre blood clots that eventually got to her brain and caused the stroke. The clots were formed from pancreatic cancer. Other pictures showed the cancer had spread to her liver and spleen.
Over the past weeks doctors and therapists at the rehab center have been treating the stroke symptoms trying to get some movement on her left side. Her speech has dramatically improved and continues to do so. Movement and sight have not significantly changed.
Cancer treatment is with chemotherapy, but with her weakened condition chemotherapy was not recommended by her doctor at University of Maryland Hospital.
The reality is that there is no amount of money, or new drugs, or best of best doctors that can cure the cancer.
If God's will is for her to remain with us, she will be cured and we can give glory to Him.
In the meantime, please pray for God's Love and Peace to fill Elaine's heart and mind.
This site also allows you to enter "comments". Our hope is that you will write a comment that describes a favorite memory, a trip, a good story, funny moments, pictures, etc. These comments are going to be printed out and placed into a book in her room. This will make for some good reading and conversation with her.
Please let us know if you have some good tips regarding blogspots. If you have some good digital photos we would like to use them to personalize the "main page".
Elaine is in good spirits today at her new home, although the weekend was quite upsetting. She was moved from Kernan Rehabilitation Center in Baltimore on Friday August 8.
Northampton Manor www.northamptonmanor.org is a nursing home in Frederick, MD that can tend to her daily needs as well as provide physical, occupational, and speech therapies. She received those therapies today and said the therapists were very nice. Tomorrow ---- 8am ---- physical therapy. Let's see if she thinks that therapist is still nice.
Dad and Mom arranged for a phone to be installed in her room. The telephone "should" be working by 5pm tomorrow, Tuesday 8/12/08. Her phone number is 301-662-7465. Please keep in mind several things when you call her. She may be in therapy or cruising the halls in her wheelchair, or most importantly, she may just hang up on you. Stroke patients have trouble focusing and the telephone is very easy to forget about. Just so you know, she still remembers who she was talking to.
A very brief update on her overall condition. Doctors found spots on her lungs from an x-ray that was taken. The spots werre blood clots that eventually got to her brain and caused the stroke. The clots were formed from pancreatic cancer. Other pictures showed the cancer had spread to her liver and spleen.
Over the past weeks doctors and therapists at the rehab center have been treating the stroke symptoms trying to get some movement on her left side. Her speech has dramatically improved and continues to do so. Movement and sight have not significantly changed.
Cancer treatment is with chemotherapy, but with her weakened condition chemotherapy was not recommended by her doctor at University of Maryland Hospital.
The reality is that there is no amount of money, or new drugs, or best of best doctors that can cure the cancer.
If God's will is for her to remain with us, she will be cured and we can give glory to Him.
In the meantime, please pray for God's Love and Peace to fill Elaine's heart and mind.
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